Withdrawal – Part 4: Unpacking the Experience

Hello again, everyone!

First off, I’d like to wish a very belated happy New Year to all my readers. It’s hard to believe I haven’t written a post on here since May 2018. Last year proved to be a long and difficult series of months, but I’m happy to say I’m in a much better place now at the end of January 2019 than I was at the same time last year.

As I mentioned in the previous post in this series, I was hospitalized for a week at the beginning of February 2018 for a full manic episode, complete with psychosis and all that that entails. Following that, I made a number of posts on here, some of which I have since taken down, since I was still decidedly manic while writing them and now either no longer agree with that I wrote, or they simply no longer make sense to me now that I’m stable again. To be honest, it’s taken a full year to begin fully coming to grips with everything that happened. The idea of blogging about any of it before now was something I just couldn’t face. However I’ve been feeling increasingly prompted lately to start writing on here again. So to start, I will finish of this Withdrawal series with two final posts.

Despite what happened last year, I am indeed completely off all psychiatric medications and have been since December 2017 (setting aside the very small dose of antipsychotic medication I took while in hospital). And believe it or not, I’m actually doing much better now than I was back when I was on medications, though I believe this is largely due to the special supplements I began taking in April last year and have remained on since. I will explain about them in depth in my next post.  I detailed my reasons for deciding to ween off my prescription medications back in the first post in this series. In this post I will give you all a summary of how that process went, and the biggest pitfall I fell into.

As I touched on in Part 2 of this series, coming off my antidepressant medication Bupropion (aka Wellbutrin) actually proved to be much easier than coming off my mood stabilizer Lamotrogine (aka Lamictal). The withdrawal from antidepressants resulted in some mild-to-moderate depression symptoms and fatigue, however I went slowly, breaking the pills into smaller and smaller pieces. From April 2016 to August 2016 I weened myself down from 150mg daily, to nothing, dropping by 25mg increments every few weeks. I took a break from pill withdrawal for a little while before attempting to withdraw from Lamictal, since it’s better not to come off multiple medications within a short period if you can avoid it. I didn’t keep as close a record of my Lamictal withdrawal, since it took most of a year (I was on 250mg daily, if I remember correctly). Each drop in that particular medication caused anxiety, disorientation and mixed-episode symptoms that were mild-to-moderate, so I had to move slowly with it. And when I finally came off the last of it on December 17, 2017, I hit a major pitfall.

Early on in December I could feel the very first inklings of hypoIMG_2584mania tickling the edges of my consciousness–more energy, increased cheerfulness and optimism, much stronger creative drive, etc. However I continued to taper anyway and ignored the symptoms, assuming they would go away. What I should have done, was stopped tapering for a while until I was past the Christmas season (always a troubling time for me when it comes to my disorder). But I didn’t. And I mistakenly believed that because I had tapered off the medication so slowly, I wouldn’t have any sort of relapse upon completely coming off of it. It wasn’t until later that I discovered that it’s common to relapse with a manic episode upon reaching a completely med-free state even if you taper off slowly. In my ignorance of this fact, I slipped into a state of denial over what was happening.

Generally I am quite self-aware with my episodes, but with this particular one, I lost all personal insight. As the hypomania began to escalate to full out mania in late January 2018, grandiosity and delusions took over and I became convinced that I wasn’t bipolar, that I had been misdiagnosed all along, and that I was just entering a new state of consciousness, a heightened level of existence (very similar to some of the delusional beliefs I experienced back in my first manic episode). I was in complete denial that I was manic, so I flat out refused to take any of my antipsychotic medication, Zyprexa. No one could convince me to. I actually had someone slip some of it into my drink at one point, unbeknownst to me, but I quickly discovered it and became utterly incensed and even harder to reason with thereafter.

hospital_hall_by_triller14Looking back, I can safely say my irrational denial sprang in large part from the fact that  having to go through another full manic episode had been my worst fear ever since my diagnosis (worse even than a natural fear of death. I had essentially developed a phobia of mania and psychosis). I couldn’t bring myself to admit the reality of what was happening. Even after ending up in the hospital and experiencing the remission of most of my psychotic symptoms, I remained convinced that I had been unjustly hospitalized, and that I had never been manic in the first place. My behavior was normal enough during my hospital stay that I was able to persuade the doctor to release me after just a week. Looking back though, I can see that I remained manic for months after my release. This, of course, was readily apparent to my parents and close friends, however they felt I was manageable and would be better off at home.

Astoundingly, I managed to go back to work right away and continue “functioning” in daily life without any of my coworkers or students picking up that anything was amiss with me (at the very least, no one ever commented on it). Though internally, I was still fluctuating between various mild delusions and paranoia. For instance, I firmly believed the RCMP were following me around and spying on me for several weeks, and could not be convinced otherwise (this was not helped by the fact that the RCMP did in fact show up at the college where I work and kept undercover surveillance on the place for a week, though this was due to an incident caused by some unruly students and had nothing to do with me. It just happened to be very bad timing) . Thankfully, I kept all of these beliefs to myself, only occasionally mentioning them to my parents and close friends, which is likely why no one else in my life noticed.

It wasn’t until April that my family discovered the supplements that I subsequently began taking. These had an immediate effect—my previously high levels of anxiety and agitation almost completely vanished. For the next month and a half I remained in a hypomanic state, still more extroverted, enthusiastic and impulsive than I usually am, but grounded once more in reality without any lingering delusions or paranoia. Thankfully I was able to direct my extra energy into studying for my RCM music history exam, which I took and passed successfully. Within a week after the exam, my hypomania vanished entirely, and I dropped into the inevitable depressive episode that always follows my manic episodes.

The Advantage of Suffering cover photo resizedThis particular episode reached a moderate-to-severe intensity by the end of May, beginning of June, though it was no worse than episodes I had experienced while on medications. It lessened to a moderate level throughout most of June and parts of July, then eased off further to a lingering mild depression that continued into December, when it finally lifted completely. The episode lasted a total of 6 and a half months, by far the longest episode I’ve ever had, though that probably isn’t surprising considering the 5 month hypomanic/manic episode that preceded it. December was actually my only month of stability in 2018, which is ironic since that’s usually my most unstable time of year. That stability has continued throughout January this year. It’s a real blessing to feel normal again. I’ve been told that as long as I stay on my current supplements, I am not likely to experience any future episodes of mania. I would very much like to believe that, but only time will tell for sure.

I did learn a number of important, if painful, lessons last year, which I will unpack in future posts. In particular, it was a time of much spiritual growth. Jesus and Mary were both very much beside me, guiding my steps the entire way, thoassumptionugh there were times when I felt entirely cut off from them and in the dark, and I backslid to a large degree in many of my devotions for an extended time. That, in and of itself, was a learning experience (a strong blow to the spiritual pride I’d been falling into prior). There were times I felt as if I’d gone completely astray and was right back to square one spiritually, my relationship with Christ and my trust in him reduced to tatters. I will delve into that much more in a future series. Suffice it to say, by the grace of God I am back on my feet again with a reinvigorated spiritual life, and a restrengthened desire for growth in holiness. I can safely say that the process of renewing my 33 day consecration to Mary that I began on December 31 and will finish this Saturday, February 2nd (Candlemas, the feast of the Presentation of the Lord), has had a large part to play in my spiritual recovery.

I’ll leave it at that for now. In my next post I’ll explain the supplements I’ve been taking and discuss my plans/strategies for the future. In the mean time, take care, and God bless you throughout the coming year!

Kasani

(Click here for Part 5)

divine-mercy4

Withdrawal – Part 3: Joyful People Suffer

It’s been a long time since I posted anything. Or at least, it feels like a long time. Realistically it’s only been a few months, but that might as well have been a lifetime ago. A lot as happened since then.

I’d like to start with the good news: I successfully came off of my last medication (Lamictal/Lamotrigine) mid-December last year. It was, in a way, the most freeing experience of my life. It precipitated a manic episode that ended with me in the hospital, but that’s all right. I learned a lot from it. Christmas 2017 was beautiful for me. So many blessings. I had a strong re-conversion experience in which I gave my life to Jesus again to do with me what he willed. Admittedly, if I’d known doing that would end with me in a hospital, I probably would have hesitated. But God knows our weakness. He hid from me how things were going to turn out. He wanted my complete and unconditional trust, and he was there for me every step of the way. He and His mother, Mary.

I plan to write a blog series explaining what happened. For now, though, I’m still processing everything and picking up the pieces (i.e. catching up on everything I’m behind on after two weeks out-of-commission, and praying to discern God’s will moving forward). I just wanted to send a shout out to my few followers that yes, I am still alive! And I’m doing great. Just decidedly worn out after everything. I look forward to writing more in the future.

Until then, take care and God bless!

Kasani

(Click here for Part 4)

 

 

 

Withdrawal – Part 2: We Don’t Get to Pick our Crosses

He will keep you firm to the end, irreproachable on the day of our Lord Jesus Christ. God is faithful. ~ Corinthians 1:8

So back at the beginning of May I posted about my decision to start weening off of my medications. I’m happy to say I’ve been completely off of my antidepressant bupropion (better known as Wellbutrin) since August 15th. All that’s left is to start slowing coming off my mood stabilizer lamotrigine (better known as Lamictal). I’d intended to write several posts throughout the summer commenting on my progress coming off the antidepressant, but things didn’t go quite the way I’d planned them out. In fact, they still aren’t.

My plan for the summer was that I would come off of my antidepressant, experience some possibly moderate to severe depressive symptoms throughout the process and get through them with God’s grace, and then be back to normal by the time the semester started in September.

This lovely plan of mine should (rightly) provoke incredulous laughter from my fellow bipolar sufferers. Really? You planned out exactly what sort of episodes you would have, and for how long, and expected the universe to cooperate with that?

Yep.

Well, it never hurts to think positively, right? Although, I was actually thinking rather negatively since I expected the summer to be hellish. In fact, it wasn’t. Coming off of bupropion was far, far easier than I expected. The worst I experienced was a week or two here and there of mild-to-moderate depression. Nothing more. (I tapered quite slowly, mind you, especially towards the end.) It was almost a let down after how hard I’d worked to brace myself for the worst.

But of course, when my plans don’t work out, it’s usually a complete and total bomb on every side. This is no exception. The rest of my plan was to hit the semester running and make my way through it relatively symptom free as I came off my mood stabilizer (which both I and my mother assumed would be easy peasy compared to the antidepressant).

Haaaah. Hahaha. Ha.

Yeah, no, that’s not quite the way it’s working out.

It seems that lamotrigine is a much harder drug for me to come off of than bupropion was (for whatever reason). Granted, I almost always have some symptoms in the fall. Season changes are a trigger for me. But I’d assumed from everything I’d heard that I could come off of this drug without any trouble over the course of a couple weeks. In fact, my psychiatrist had said back in April  that I could stop it cold-turkey without any problems (and that at the same time I could stop my antidepressant cold turkey. Needless to say, I didn’t listen to her). So I decided to drop from 250mg right down to 200mg.

Well. That  didn’t go over well. Much to my surprise, I almost  couldn’t get out of bed the next morning. So I decided to bump back up to 225mg. Ever since that drop I’ve been experiencing mixed episode symptoms to a greater or lesser degree. They were quite dramatic in the week following the drop, and then eased off since then and have been fluctuating between hardly there or unpleasantly intense, depending on how much sleep I get. I’m fairly certain much of what I’m experiencing now is due to the season change and my body adjusting to my new sleep schedule. But the symptoms I experienced in the week after my initial drop were far more severe than any of the withdrawal effects I experienced from the antidepressant. Maybe its a coincidence and I would have experienced those symptoms if I hadn’t changed my meds. Its possible, but I’m certainly not going to count on that. I’ll be tapering this drug much slower than my last one, and have resigned myself to a rougher semester than I’ve had for a while.

I’m not going to lie. My initial response to God about this unplanned development was a whiny one. Why couldn’t I have just gotten all of the really difficult symptoms out of the way in the summer? I could have afforded to be incapacitated then! I’d been prepared for that. I’d been all ready and eager to shoulder that cross. I hadn’t signed on for this cross. The cross of wading through my university courses while battling symptoms. That hadn’t been part of my plan!

The response I received was quite simple: crosses aren’t something we get to choose. Jesus didn’t go to his father with a plan all worked out about which cross he was ready  to carry. He took what his father gave him— and it certainly wasn’t a cross he wanted. He asked to have it  taken away if possible, but he also bowed to his father’s will. And his father gave him all of the grace necessary to bear it. He sent an angel to him to strengthen him in his Agony,  sent Simon of Cyrene to help him carry the cross, and sent both his mother and Veronica to encourage him on the road.

He does no less for us, and he also expects no less. He may not let us choose our cross, but he will always, without fail, give us the grace necessary to bear it, so long as we go to him for our strength and don’t try to do it all by ourselves.

This whole experience has also served as a gentle reminder that I need to stop making life plans and assuming  they will work the way I expect, even if I think I’ve made them with him in mind. Really, you’d think I’d have figured that out by now.

As a parting thought, here’s a lovely something I stumbled across on Pinterest:10549a282c900ed507a9aa63b877cb22

Crosses serve a purpose, even if we can’t see it in the moment.

Take care and God bless!

Kasani

(Click here for Part 3)

 

 

 

My Story – Part 2: The Aftermath

After the ship of my old life had been shattered on the rocks of hospitalization, I was dragged aboard a new, unfamiliar vessel, and I wasn’t sure how to feel about it. Fully coming to terms with my diagnosis would end up taking several years.

But I’m getting ahead of myself.

While still in the hospital, after medications had grounded me once more in reality, my doctor tried to explain to me that in bipolar disorder, what goes up must come down. A depressive episode almost always follows on the heels of a manic one. But I was still hypomanic (the term for mild mania), and thus cheerful and optimistic and feeling great. I assured him that I was overall a very happy person and I was sure I’d be fine. And I wasn’t deluded in thinking this. I was going on experience. For most of my life I’d been a happy, well-adjusted person. Happy was my norm. I had no way of knowing just how radically that would change.

Not surprisingly, I did experience a depressive episode a couple weeks later. At the time, I thought it was the worst experience of my life, mainly because it contrasted so drastically with the euphoria of the preceding manic episode. But looking back, I can see it was pretty mild. It only lasted a little under two weeks, and I didn’t end up needing antidepressants. After that episode, God granted me 7 months of almost total stability. This allowed me to get back on my feet and start trying to live my old life again, but it did nothing to prepare me for the reality of my disorder.

d6uhuht-d7e8ebca-0a65-4cc5-9640-179e1bc594b1By the time August rolled around, I was completely adjusted to my disorder (so I thought) and not the least bit embarrassed or uncomfortable talking about it. It was a bit like a cool new label that put me in a separate category from most people– like a weird sort of bragging right (boy, did that ever change over the next several months…). My best friend, who had been diagnosed with ADHD within the same month that I was diagnosed with Bipolar (funny how these things work out), was amazed by my nonchalant attitude towards my disorder. She had been having a difficult time coming to grips with her own diagnosis without it completely destroying her self-esteem.

The difference between her and me was that she had been struggling with the effects of her illness every day of her life without fully understanding it, and now she was still having to deal with it every day but with the added bonus of having a label slapped onto her that essentially declared her “defective” because of it. There was no way to deny the reality of it. It was part of her life 24/7. The fact that she was a straight-A student, whom her friend’s thought the world of, did nothing to ease the initial sting of the diagnosis. She did eventually come to grips with it, and even met and befriended some fellow sufferers of the disorder, but adjusting to the diagnosis of a mental illness takes time.

For me, the fact that I had a mental illness hadn’t yet sunk in. While the events surrounding my hospitalization had been very dramatic, the disorder seemed to have vanished into thin air after a month had gone by. Once I stabilized, it was as if it had never happened. The only changes in my life were that I was now on medication and I had to monitor my sleep and stress levels to avoid triggering another episode. Other than that I felt normal. It wasn’t compromising my ability to function like a normal person. I didn’t feel the least bit embarrassed about it.

In the fall, that changed.

Part-way through September, 2012, I crashed into a depressive episode. I didn’t know it at the time, but it was the start of what would turn into nearly two years of rapid-cycling. After September, I went on to have 12 more episodes over the course of the next year, and 6 the year after that. The first year of that very nearly killed me. From December 2012 to May 2013, I went straight from depressive episode, to hypomanic episode, to depressive episode, to hypomanic episode, with only a day or two of stability here and there. The depressive episodes typically dragged on for close to a month, while the hypomanic episodes usually lasted a couple weeks. If I hadn’t had an antipsychotic medication (Zyprexa) on hand as a PRN, the hypomanic episodes would almost certainly have progressed into full-blown manic ones, and I likely would have had to be hospitalized again. Thankfully that didn’t happen. But most of the hypomanic episodes were dysphoric. In other words, they were mixed episodes. So to say that they didn’t lead to euphoric happiness would be a very impressive understatement. I was miserable.

It was around this time that I began to feel very insecure about my disorder. When I was Disabledstable,  I had successfully taken several university correspondence courses and passed with flying colors. In 2013, I failed a university course because I was hypomanic for my midterm and depressed for my final. I began to think I would never be able to attend an actual university. If I couldn’t handle just one correspondence course, how could I possibly handle a full-time course-load on a real campus?

I withdrew from all my friends except my previously mentioned best friend (most of my friends at that time were not a very positive influence anyway). I muddled along putting one foot in front of the other, and stumbling into a number of pitfalls along the way. I came to have a very intimate understanding of why people self-harm, and thoughts of suicide were rarely far from my mind. As far as I can remember, my faith life did not deteriorate, but it certainly didn’t improve either. To be honest, I’ve forgotten large chunks of that period, especially some of the depressive episodes, and what I do remember is foggy at best. The only reason I know most of what took place in my head in the years of 2012 and 2013 is that I kept a journal. It was one of the coping mechanisms I latched on to.

The year 2014 marked the beginning of my recovery. It was a much stabler year, thanks to changes in my medication. The first mood stabilizer I was put on when I was diagnosed was Lithium. It didn’t work, and over time it began to give me alarming muscle weakness as a side-effect. Any muscle strain at all caused me to shake like a leaf. I looked like a caffeine addict whenever I so much as raised a tall glass of water to my lips, and walking up a single flight of steps left me gasping for air and utterly exhausted.

Thankfully those symptoms went away when I was taken off the drug. The next mood pills  picstabilizer I was put on was Lamictal. My doctor slowly increased the dose until I stopped popping regularly into hypomania, the process of which involved some strange side-effects until I adjusted to it (disorientation, lightheadedness, panic attacks). I also wound up on a constant dose of Wellbutrin (an antidepressant), which my doctor would increase whenever I got depressed, and would decrease again as soon as the increase popped me up into hypomania (which it always did). I also kept the previously mentioned antipsychotic Zyprexa on hand to take whenever hypomanic symptoms appeared. This combination seemed to work, and I was much more stable over the course of 2014 and 2015. However, at the end of 2015, my mother found out some very disturbing things about the medications I was on and after much research and debate, I decided to start weening off all my medications in 2016. You can read about that story here. (As that series details, I am now living completely med-free with the help of some wonderful supplements, and doing far better than when I was on psychiatric medications.)

December 23rd, 2015 marked the end of the fourth year since my diagnosis. A lot happened in those 4 years that I’m not going to try and summarize here. Some of it appears my other posts if it’s relevant to the issue I’m discussing. To wrap up, I am finally adjusted to my disorder. I’m back to living a relatively normal life. I’m happy again. Whether that will last or not is in God’s hands, and I’m content to leave it there.

One of the most important lessons my disorder has taught me is that we have to live in the now. The future is impossible to predict. Life is much less stressful when we let go of the illusion that we’re in control and instead trust God to take over the navigation of our vessel. He knows where we’re supposed to be heading, and he will give us all the grace and support we need in order to get there. We just have to be willing to accept it.

landscape_100_by_okbrightstar_stock_d2yiltm-fullview

Take care, and God bless.

Kasani